Category: photos

Monday, May 9

PS 7/10 Sluggish. Headache. Ache all over. Sad lower back.

7:20am 2 boiled eggs, hot drink

I feel like you feel when your period is going to start in a few days.

10:30 App with Dr. K for official 2nd opinion from rheumatologist. I like her take on things the best so far. She confirms the diagnosis but tries to cheer me up. This will be more like you were in the room if you imagine her saying it in her great Indian accent:

“So, yes, you have lupus and that is maybe hard news. But, because you are sub-acute, we can think of it like you have a touch of lupus. You see what I mean? It’s more positive, so, we keep you alive, yes? Not so serious when we say it that way. So, let’s say you feel kind of crappy to really crappy most of the time. Ok? That’s Ok. Because it means you are not in hospital getting half your intestines removed, you see what I mean? You have it pretty good, sweetie, is what I’m saying, so don’t feel too bad. Just take your medications and get lots of sleep, stay out of the sun and don’t exert yourself.”

I would like a Tshirt with that slogan. Just a Touch of Lupus.

12:30pm DZ Akins for Matzo ball soup, water, rye toast

5pm palmful raw cashews, water

I totally have period brain and sadblah body feeling. Lower back pain and headache feel less like regular pain and more like intense hormone sadness.

Sunday, May 8th

Happy Mother’s Day.
PS 6/10 Lower back, arms ACHING bad, headache. Feel sluggish but mood is still good.

8am 2 boiled eggs, coffeechicorymilk

10am Meet M & M for breakfast at Mission Cafe. It’s Mother’s Day so Wheee I’ll have whatever I want.
Blueberry pancakes, egg, potatoes, coffeemilk

We decide to go to see Win Win but see Kill the Irishman instead. Gory. Great acting, what I saw of it through my fingers.

I have a palmful of raw cashews during the film.

We head to M&Ms for mellow hangout time.

3pm Beer, watermelon, dates

6pm whole wheat noodles, mozz cheese, basil, pine nuts YUMO

8pm half bean burrito, corn chips, pico de gallo, guinness
PS 6/10

Saturday, May 7th

Joe went to OC.
PS 4/11 Good morning. Feel positive and energetic

8am
Boiled egg, coffeechicorymilk

Called M. Meeting her in Kensignton for brunch. M says I look good. I feel good. I decide to splurge.

11am waffle butter syrup coffee milk

We peruse the neighborhood for shelves and find some Little Debbie snack wire shelves that I love for 7$. I hit the Container Store on the way home for a few paper boxes.

2pm pure bar, white tea

I’m feeling good and having so much fun cleaning the shelves and sorting paperwork, I don’t think about making sure I eat and drink enough. I did too much.

8pm I suddenly and completely feel worn out.
Fish and chips, water

My body aches. My head feels blurry. I know I didn’t take care of myself and this is the result. I wait for Joe to come home from OC then go to bed.

PS 8/10